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LEARNING TO BE FLEXIBLE

Life with an Ehlers Danlos Syndrome and Dysautonomia

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Blog: Welcome

Complex Subluxations

Repeated subluxations (partial dislocations) can destabilize affected joints and compromise nearby joints.

Nervous System Flooding

A first hand account of nervous system overload due to dysautonomia.

Family, Crip Doulas, and Coming Out

Crip Doulas are an important part of the disabled experience and disability community. As always, we take care of us.

What It's Like To Work With A Caregiver

It can be hard to imagine what a caregiving relationship is like, how it's formed, and how people access care. Learn more here.

Function Over Fashion

As my abilities and sensitivities have shifted, clothing more often serves a utilitarian purpose.

Work in Progress: Approaching Grief

I'm working through some grief related to career goals. How can I return to my love of music when it feels so wrapped up in my limitations?

Disability Pride Month 2022

Reflections on disability and chronic illness for Disability Pride Month 2022.

Facing Change with Meditation

Disability Chronic illness chronic pain meditation labyrinth mindfulness ehlers danlos syndrome dysautonomia eds

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