Learningto beFlexibleMay 16, 20232 min readEating with EDSMy experiences eating with Ehlers Danlos Syndrome.
Learningto beFlexibleFeb 24, 20234 min readComplex SubluxationsRepeated subluxations (partial dislocations) can destabilize affected joints and compromise nearby joints.
Learningto beFlexibleFeb 8, 20234 min readNervous System FloodingA first hand account of nervous system overload due to dysautonomia.
Learningto beFlexibleNov 29, 20226 min readWhat It's Like To Work With A CaregiverIt can be hard to imagine what a caregiving relationship is like, how it's formed, and how people access care. Learn more here.
Learningto beFlexibleNov 15, 20222 min readHoliday Gift Guide from Learning to be FlexibleIf you’re thinking of picking up gifts for the disabled and chronically ill people in your life- be sure to read this holiday gift guide 1st
Learningto beFlexibleNov 12, 20223 min readUncompensated Volunteer LaborUncompensated volunteers are not an accurate sample of the patient community, orgs can change the way they engage w uncompensated volunteers
Learningto beFlexibleNov 1, 20224 min readFunction Over FashionAs my abilities and sensitivities have shifted, clothing more often serves a utilitarian purpose.
Learningto beFlexibleOct 18, 20228 min readIrresponsible Journalism Increases Misunderstanding of Disability and Chronic IllnessIrresponsible journalism can and has led to further marginalization of the disability community.
Learningto beFlexibleOct 4, 20222 min readWhat's the deal with the pumpkins of teal?Information about the Teal Pumpkin Project
Learningto beFlexibleAug 23, 20226 min readThe Great MysteryIt's not always possible or worth the energy to discover all the causes of any flare or change in symptoms.
Learningto beFlexibleJul 26, 20225 min readDisability Pride Month 2022Reflections on disability and chronic illness for Disability Pride Month 2022.