Learningto beFlexibleMay 16, 20232 min readEating with EDSMy experiences eating with Ehlers Danlos Syndrome.
Learningto beFlexibleApr 17, 20236 min readWrongfully Imprisoned: Reflections on the Epiphany of Amanda KnoxReflections on the shared experience of finding meaning while dealing with chronic illness and wrongful imprisonment.
Learningto beFlexibleMar 30, 20233 min readWhat is Disability Justice?The definition, history, and importance of the Disability Justice movement.
Learningto beFlexibleFeb 24, 20234 min readComplex SubluxationsRepeated subluxations (partial dislocations) can destabilize affected joints and compromise nearby joints.
Learningto beFlexibleFeb 8, 20234 min readNervous System FloodingA first hand account of nervous system overload due to dysautonomia.
Learningto beFlexibleJan 18, 20235 min readFamily, Crip Doulas, and Coming OutCrip Doulas are an important part of the disabled experience and disability community. As always, we take care of us.
Learningto beFlexibleJan 3, 20235 min readBook Report: Demystifying DisabilityA brief book report on Demystifying Disability by Emily Ladau
Learningto beFlexibleNov 29, 20226 min readWhat It's Like To Work With A CaregiverIt can be hard to imagine what a caregiving relationship is like, how it's formed, and how people access care. Learn more here.
Learningto beFlexibleNov 15, 20222 min readHoliday Gift Guide from Learning to be FlexibleIf you’re thinking of picking up gifts for the disabled and chronically ill people in your life- be sure to read this holiday gift guide 1st
Learningto beFlexibleNov 12, 20223 min readUncompensated Volunteer LaborUncompensated volunteers are not an accurate sample of the patient community, orgs can change the way they engage w uncompensated volunteers
Learningto beFlexibleNov 1, 20224 min readFunction Over FashionAs my abilities and sensitivities have shifted, clothing more often serves a utilitarian purpose.
Learningto beFlexibleOct 18, 20228 min readIrresponsible Journalism Increases Misunderstanding of Disability and Chronic IllnessIrresponsible journalism can and has led to further marginalization of the disability community.
Learningto beFlexibleOct 14, 20225 min readDysautonomia Awareness 2022Learn a little bit about my experience with Dysautonomia. I compare parts of Lara Bloom‘s recent post with my own experience.
Learningto beFlexibleOct 4, 20222 min readWhat's the deal with the pumpkins of teal?Information about the Teal Pumpkin Project
Learningto beFlexibleSep 20, 20222 min readBook Report: A Quick Guide to Sex & DisabilityBook report on A Quick Guide to Sex & Disability.
Learningto beFlexibleSep 6, 20227 min readWork in Progress: Approaching GriefI'm working through some grief related to career goals. How can I return to my love of music when it feels so wrapped up in my limitations?
Learningto beFlexibleAug 23, 20226 min readThe Great MysteryIt's not always possible or worth the energy to discover all the causes of any flare or change in symptoms.