top of page

LEARNING TO BE FLEXIBLE

Life with an Ehlers Danlos Syndrome and Dysautonomia

background-gd54804645_1920.jpg
Blog: Welcome

Eating with EDS

My experiences eating with Ehlers Danlos Syndrome.

What is Disability Justice?

The definition, history, and importance of the Disability Justice movement.

Complex Subluxations

Repeated subluxations (partial dislocations) can destabilize affected joints and compromise nearby joints.

Nervous System Flooding

A first hand account of nervous system overload due to dysautonomia.

Family, Crip Doulas, and Coming Out

Crip Doulas are an important part of the disabled experience and disability community. As always, we take care of us.

What It's Like To Work With A Caregiver

It can be hard to imagine what a caregiving relationship is like, how it's formed, and how people access care. Learn more here.

Holiday Gift Guide from Learning to be Flexible

If you’re thinking of picking up gifts for the disabled and chronically ill people in your life- be sure to read this holiday gift guide 1st

Uncompensated Volunteer Labor

Uncompensated volunteers are not an accurate sample of the patient community, orgs can change the way they engage w uncompensated volunteers

Function Over Fashion

As my abilities and sensitivities have shifted, clothing more often serves a utilitarian purpose.

Dysautonomia Awareness 2022

Learn a little bit about my experience with Dysautonomia. I compare parts of Lara Bloom‘s recent post with my own experience.

Work in Progress: Approaching Grief

I'm working through some grief related to career goals. How can I return to my love of music when it feels so wrapped up in my limitations?

The Great Mystery

It's not always possible or worth the energy to discover all the causes of any flare or change in symptoms.

Blog: Blog2

Subscribe Form

Thanks for submitting!

Blog: Subscribe
bottom of page