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LEARNING TO BE FLEXIBLE

Life with an Ehlers Danlos Syndrome and Dysautonomia

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Blog: Welcome

Eating with EDS

My experiences eating with Ehlers Danlos Syndrome.

Family, Crip Doulas, and Coming Out

Crip Doulas are an important part of the disabled experience and disability community. As always, we take care of us.

Function Over Fashion

As my abilities and sensitivities have shifted, clothing more often serves a utilitarian purpose.

Work in Progress: Approaching Grief

I'm working through some grief related to career goals. How can I return to my love of music when it feels so wrapped up in my limitations?

The Great Mystery

It's not always possible or worth the energy to discover all the causes of any flare or change in symptoms.

Work in Progress: Abilities and Priorities

Whether it's from chronic illness/injury or simply the inability to devote time and resources, we all lose skills we once had.

To NOT Do List

Ehlers Danlos Syndrome EDS Dysautonomia chronic illness disability disabled limitations

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