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LEARNING TO BE FLEXIBLE

Life with an Ehlers Danlos Syndrome and Dysautonomia

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Blog: Welcome

Family, Crip Doulas, and Coming Out

Crip Doulas are an important part of the disabled experience and disability community. As always, we take care of us.

Uncompensated Volunteer Labor

Uncompensated volunteers are not an accurate sample of the patient community, orgs can change the way they engage w uncompensated volunteers

Function Over Fashion

As my abilities and sensitivities have shifted, clothing more often serves a utilitarian purpose.

Work in Progress: Approaching Grief

I'm working through some grief related to career goals. How can I return to my love of music when it feels so wrapped up in my limitations?

Disability Pride Month 2022

Reflections on disability and chronic illness for Disability Pride Month 2022.

Work in Progress: Abilities and Priorities

Whether it's from chronic illness/injury or simply the inability to devote time and resources, we all lose skills we once had.

To NOT Do List

Ehlers Danlos Syndrome EDS Dysautonomia chronic illness disability disabled limitations

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