LEARNING TO BE FLEXIBLE
Life with an Ehlers Danlos Syndrome and Dysautonomia

What is Disability Justice?
The definition, history, and importance of the Disability Justice movement.
Nervous System Flooding
A first hand account of nervous system overload due to dysautonomia.
Family, Crip Doulas, and Coming Out
Crip Doulas are an important part of the disabled experience and disability community. As always, we take care of us.
Book Report: Demystifying Disability
A brief book report on Demystifying Disability by Emily Ladau
Stories From a Queer, Former Bartender- In the Wake of the Shooting at Club Q
If not gay nights, where are we allowed to exist, celebrate, and fall in love? Here are some stories from working a queer, club night.
Holiday Gift Guide from Learning to be Flexible
If you’re thinking of picking up gifts for the disabled and chronically ill people in your life- be sure to read this holiday gift guide 1st
Uncompensated Volunteer Labor
Uncompensated volunteers are not an accurate sample of the patient community, orgs can change the way they engage w uncompensated volunteers
Function Over Fashion
As my abilities and sensitivities have shifted, clothing more often serves a utilitarian purpose.
Irresponsible Journalism Increases Misunderstanding of Disability and Chronic Illness
Irresponsible journalism can and has led to further marginalization of the disability community.
Dysautonomia Awareness 2022
Learn a little bit about my experience with Dysautonomia. I compare parts of Lara Bloom‘s recent post with my own experience.
What's the deal with the pumpkins of teal?
Information about the Teal Pumpkin Project
Book Report: A Quick Guide to Sex & Disability
Book report on A Quick Guide to Sex & Disability.
The Great Mystery
It's not always possible or worth the energy to discover all the causes of any flare or change in symptoms.
Balancing Independence and Support
Balancing the desire for independence with the need for support can be challenging when you are managing chronic illness and disability.
Disability Pride Month 2022
Reflections on disability and chronic illness for Disability Pride Month 2022.
Disability Stigma and the Elderly
Not all elderly are disabled and not all disabled are elderly. Please don't use one when you mean both.
Community
Ehler Danlos Syndrome EDS Dysautonomia chronic pain chronic illness disability disabled queer community


















