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LEARNING TO BE FLEXIBLE

Life with an Ehlers Danlos Syndrome and Dysautonomia

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Blog: Welcome

What is Disability Justice?

The definition, history, and importance of the Disability Justice movement.

Nervous System Flooding

A first hand account of nervous system overload due to dysautonomia.

Family, Crip Doulas, and Coming Out

Crip Doulas are an important part of the disabled experience and disability community. As always, we take care of us.

Holiday Gift Guide from Learning to be Flexible

If you’re thinking of picking up gifts for the disabled and chronically ill people in your life- be sure to read this holiday gift guide 1st

Uncompensated Volunteer Labor

Uncompensated volunteers are not an accurate sample of the patient community, orgs can change the way they engage w uncompensated volunteers

Function Over Fashion

As my abilities and sensitivities have shifted, clothing more often serves a utilitarian purpose.

Dysautonomia Awareness 2022

Learn a little bit about my experience with Dysautonomia. I compare parts of Lara Bloom‘s recent post with my own experience.

The Great Mystery

It's not always possible or worth the energy to discover all the causes of any flare or change in symptoms.

Balancing Independence and Support

Balancing the desire for independence with the need for support can be challenging when you are managing chronic illness and disability.

Disability Pride Month 2022

Reflections on disability and chronic illness for Disability Pride Month 2022.

Disability Stigma and the Elderly

Not all elderly are disabled and not all disabled are elderly. Please don't use one when you mean both.

Community

Ehler Danlos Syndrome EDS Dysautonomia chronic pain chronic illness disability disabled queer community

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