My experiences eating with Ehlers Danlos Syndrome.

Repeated subluxations (partial dislocations) can destabilize affected joints and compromise nearby joints.

A first hand account of nervous system overload due to dysautonomia.

Crip Doulas are an important part of the disabled experience and disability community. As always, we take care of us.

It can be hard to imagine what a caregiving relationship is like, how it's formed, and how people access care. Learn more here.

Uncompensated volunteers are not an accurate sample of the patient community, orgs can change the way they engage w uncompensated volunteers

As my abilities and sensitivities have shifted, clothing more often serves a utilitarian purpose.

Irresponsible journalism can and has led to further marginalization of the disability community.

Learn a little bit about my experience with Dysautonomia. I compare parts of Lara Bloom‘s recent post with my own experience.

Information about the Teal Pumpkin Project

Book report on A Quick Guide to Sex & Disability.

I'm working through some grief related to career goals. How can I return to my love of music when it feels so wrapped up in my limitations?

It's not always possible or worth the energy to discover all the causes of any flare or change in symptoms.

Balancing the desire for independence with the need for support can be challenging when you are managing chronic illness and disability.

Reflections on disability and chronic illness for Disability Pride Month 2022.

Whether it's from chronic illness/injury or simply the inability to devote time and resources, we all lose skills we once had.

It's frustrating the way the disability community is erased, often using the elderly as a placeholder for chronically ill and disabled ppl.

Not all elderly are disabled and not all disabled are elderly. Please don't use one when you mean both.

Ehler Danlos Syndrome EDS Dysautonomia chronic pain chronic illness disability disabled queer community

Disability Chronic illness chronic pain meditation labyrinth mindfulness ehlers danlos syndrome dysautonomia eds