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LEARNING TO BE FLEXIBLE

Life with an Ehlers Danlos Syndrome and Dysautonomia

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Blog: Welcome

Eating with EDS

My experiences eating with Ehlers Danlos Syndrome.

What is Disability Justice?

The definition, history, and importance of the Disability Justice movement.

Complex Subluxations

Repeated subluxations (partial dislocations) can destabilize affected joints and compromise nearby joints.

Nervous System Flooding

A first hand account of nervous system overload due to dysautonomia.

What It's Like To Work With A Caregiver

It can be hard to imagine what a caregiving relationship is like, how it's formed, and how people access care. Learn more here.

Holiday Gift Guide from Learning to be Flexible

If you’re thinking of picking up gifts for the disabled and chronically ill people in your life- be sure to read this holiday gift guide 1st

Uncompensated Volunteer Labor

Uncompensated volunteers are not an accurate sample of the patient community, orgs can change the way they engage w uncompensated volunteers

Function Over Fashion

As my abilities and sensitivities have shifted, clothing more often serves a utilitarian purpose.

The Great Mystery

It's not always possible or worth the energy to discover all the causes of any flare or change in symptoms.

Balancing Independence and Support

Balancing the desire for independence with the need for support can be challenging when you are managing chronic illness and disability.

Disability Pride Month 2022

Reflections on disability and chronic illness for Disability Pride Month 2022.

Disability, Social Media, and the Great Outdoors

It's frustrating the way the disability community is erased, often using the elderly as a placeholder for chronically ill and disabled ppl.

Community

Ehler Danlos Syndrome EDS Dysautonomia chronic pain chronic illness disability disabled queer community

Facing Change with Meditation

Disability Chronic illness chronic pain meditation labyrinth mindfulness ehlers danlos syndrome dysautonomia eds

My Journey to Diagnosis

Ehlers Danlos Syndrome, Dysautonomia, EDS, chronic illness, disability, disabled, diagnosis

Blog: Blog2

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